Special Love has compiled these additional resources to assist families in obtaining the assistance they need as they deal with their child’s cancer.
Education/Knowledge
Triage Cancer
Triage Cancer® is a national, nonprofit organization that provides free education on legal and practical issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources. The Legal & Financial Navigation Program offers one-on-one help with issues such as work, health and disability insurance, finances, and estate planning. CancerFinances.org is an online toolkit to help people manage finances after a cancer diagnosis.
Special Love is honored to be partnering with Triage Cancer in 2024 for their Webinar Series! These webinars were created with the intention of helping families with their cancer reduce stress when it comes to their care. View the upcoming webinars here.
Financial Assistance
Bone Marrow & Cancer Foundation
The Bone Marrow & Cancer Foundation, founded in 1992, is dedicated to improved the quality of life for cancer and transplant patients and their families by providing vital financial assistance, comprehensive resources, educational information, physician referrals, and emotional supports programs.
CancerCare
CancerCare is a national nonprofit organization that provides free professional counseling. educational programs, financial assistance, and practical help to people with cancer, their loved ones and the bereaved.
Just TRyan It
Just TRyan It seeks to positively impact the lives of families whose children have been diagnosed with cancer by providing them with financial assistance. They strive to instill the importance of philanthropy and service, promote wellness, and inspire tomorrow’s leaders to make a difference in their communities.
DC Candlelighters
DC Candlelighters is an all-volunteer organization providing emotional, educational, practical, and financial support to families of children fighting cancer. They strive to provide a light in the darkness because they believe no family should face the uncertain world of childhood cancer alone.
https://www.dccandlelighters.org
B+ Foundation
B+ Foundation provides financial assistance to families of children with cancer across the United States, as well as funds childhood cancer research.
HealthWell Foundation
HealthWell Foundation is a leading nonprofit dedicated to improving access to care for America’s underinsured. When health insurance is not enough, they fill the gap by assisting with copays, premiums, deductibles, and out-of-pocket expenses,
https://healthwellfoundation.org
StillBrave Childhood Cancer Foundation
StillBrave Childhood Cancer Foundation’s mission is to provide non-medical supportive care to children with cancer and their families.
Pinky Swear
Pinky Swear’s mission is to help kids with cancer and their families with financial and emotional support.
Patient Advocacy Foundation
PAF is a nonprofit that provides direct case management services and financial assistance to patients and caregivers. These include helping people navigate the health care system, working with health care providers, payers, and employers to assure that patients have access to affordable care, financial and co-pay assistance and teaching self-advocacy to patients and caregivers.
https://www.patientadvocate.org
Programming
Cool Kids Campaign
Cool Kids Campaign is devoted to improving the quality of life for pediatric oncology patients and their families by focusing on the academic, social, and emotional needs brought on by a cancer diagnosis.
https://www.coolkidscampaign.org
Casey Cares Foundation
At Casey Cares, their mission is to lift the spirits of everyone affected by childhood illness through programs such as Celebration Vacations, Birthday Blasts, and Caring Connections. Connecting with families where they life.
Home Modifications
Sweet Julia Grace Foundation
Sweet Julia Grace Foundation helps to fill the gaps, grant wishes and meet non-medical needs for children who are seriously ill, have special needs, or are in a medical crisis.
https://www.sweetjuliagrace.org
Housing/Transportation
Believe in Tomorrow Children’s Foundation
The Believe in Tomorrow Children’s Foundation provides exceptional hospital and respite housing services to critically ill children and their families. We believe in keeping families together during a child’s medical crisis, and that the gentle cadence of normal family life has a powerful influence on the healing process.
National Children’s Cancer Fund
The National Children’s Cancer Fund helps alleviate the financial burden of travel and lodging for families who have a child with cancer. This includes transportation expenses such as mileage, airfare, and lodging when a child needs to stay near the hospital for treatment and nonprofit lodging is unavailable.
Ronald McDonald House
Keeping families with sick children together and near the care and resources they need.
Support
Blood & Marrow Transplant Information Network
The Blood & Marrow Transplant Information Network provides answers, advice, and a caring companion through your transplant journey. Our website is your gateway to detailed information about what to expect before, during, and after your transplant. Popular features including: an in-depth information about each step of the transplant process, potential complications, and practical solutions; emotional support for patients, survivors, and caregivers; facts about more than 200 transplant centers in the U.S., including staff, number of transplants performed, accreditation, and diseases treated; and extensive information for survivors about how to live well after transplant.
CancerConnect
The CancerConnect Community is a fully moderated, peer-to-peer support group for cancer patients and caregivers. Connect with other patients in your community and from leading cancer centers to learn, share information, and support each other.
https://news.cancerconnect.com/
Cancer Support Community
As the largest professionally led nonprofit network of cancer support worldwide, the CSC is dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community. This global network of 175 locations, including CSC and Gilda’s Club centers, health-care partnerships, and satellite locations that deliver more than $50 million in free support services to patients and families.
https://www.cancersupportcommunity.org
CaringBridge
CaringBridge transforms your personal connections into support when you need it most, providing personal websites where people can share updates during any type of health event. A CaringBridge website allows you to share news quickly and easily, while ensuring that your privacy is always protected. Through a CaringBridge website, everyone can leave messages of support and encouragement. We also provide a planner that helps loved ones coordinate care and organize daily tasks, such as bringing a meal, taking care of pets, or driving to appointments.
NOVA Momcology Group
A Facebook page where you can share information about your situation and receive support from other moms.
https://www.facebook.com/momcologyorg/
Jesse Rees Foundation
We fulfill our mission by connecting with families. bringing awareness to their stories, offering them a network of helpful resources and sending the entire family continual doses of encouragement throughout their journey. ClubNEGU is free for all Courageous Kids and their Super Sibs and parents. Each ClubNEGU receives fun boosts of hope, joy, and love each month. They also have access to our free smart phone app iNEGU, national resource guide, and get their story shared on social media.
Life with Cancer
Life with Cancer helps you meet the challenges of living with cancer by providing you and your loved ones with education, information, and support, free of charge, no matter where you live or receive treatment.
Imerman Angels
Imerman Angels provides personalized connections that enable one-on-one support among cancer fighters, survivors, and caregivers. Imerman Angels partners individuals seeking cancer support with a “Mentor Angel.” These one-on-one relationship’s inspire hope and offer the chance to ask personal questions and receive support from someone who is uniquely familiar with the experience. They help navigate the system, determine the family’s options and create their own supports systems. Support is also provided to those who have lost someone to cancer and is looking to speak to someone who has lost someone to cancer. Angels and all Mentor Angels are properly screened and trained.
Children’s Brain Tumor Foundation
Children’s Brain Tumor Foundation’s mission is to improve the treatment, quality of life, and long-term outlook for children and families affected by a brain or spinal cord tumor. CBTF offers monthly online chats for caregivers, brain tumor survivors, and for bereaved caregivers. These chats are moderated by CBTF social workers but topics follow the needs expressed by the families and survivors who join them.
Parent Educational Advocacy Training Center (PEATC)
PEATC empowers families and individuals with disabilities through education and training. They accomplish this by offering: services and support for families and professionals, easy-to-understand, research-based information and training, and opportunities for strategic partnerships and advocacy for systemic improvement.
